It’s kind of funny how things that would have driven “old
you” crazy and last year you would have not been able to handle, have now become common place and just another day in the life. I’m still playing the fighting two infections
at once game (thankfully that number hasn't increased) and it’s gone from a serious
struggle, to basically the “norm.” There's this whole
fungal infections have been playing games of hide and seek in my GI system
since September. Who knows how long it
was hiding prior to us seeking it in September?
I should probably make a tinder for it so it can find "true love" or even a fun night elsewhere and leave me alone. If anyone is looking for a good time, its interests include: causing a ruckus, inducing nausea and
the occasional vomiting. It’s quite the
strong-willed organism and the mild anti-fungals do nothing for it. Maybe when stupid doctors make me try them,
they’re in my stomach laughing thinking silly human thinks this will stop
me?! Hahahaha Try again. Obviously I know that the infections aren’t
saying these things, but at times I know what they are saying without them
actually saying anything we're just on that level.
Thankfully I have some amazing specialists that understand my
current circumstances are “complicated” as we’re in the process of diagnosing
an immunodeficiency disease. They are willing to put me on long-term
antifungals and antibiotics. I was
dealing with that fun on vacation as my old internist is functionally useless
and if I wasn’t moving soon I’d be firing another doctor.
Due to the risks of this antifungal medication on my liver,
I can only take it three times I week. I’ve
also learned that the fungal infection loves sugary foods so I mostly drink water. I gave up desserts on-board the cruise to have
some extra fruit or I avoided the juice or drink I may have wanted to instead
enjoy something else sugary. It’s this really fun balancing game. On the antifungal days I’ve learned I have
more freedom to have some more sugary foods before I end up getting sick or
curling up into a ball because my stomach hurts so badly.
Yesterday on the flight home I was wearing my super awesome
face mask and as always nausea was still quite prevalent. I ended up getting sick on the plane and
freaking out the flight attendant. I was
fine and like okay I’m kind of used to this so lets keep doing my thing. She insisted on giving me stacks of paper
towels, stacks of barf bags, and a whole white plastic trash bag I could use at
my leisure.
Last night on that plane, it hit me that life’s about finding
the fun in FUNgal infections. I
could have been so angry and like why me and why did I throw-up as soon as I
got on the plane (I mean I know why I throw-up because I took a risk and had
dessert with lunch), but instead I dealt with the situation, popped some gum
and kept smiling and doing my thing. At
this point, I try to not let things get me down as I’m not all about life. I mean I throw the occasional pity party, but
I don’t do my daily exercise as I swim through seas of self-pity.
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